Scientific Partnerships & Data-Driven Impact in Rare Diseases

At Tekkare, our scientific partnerships cover a range of collaborations, from academic research to institutional initiatives. While most of our collaborations address rare diseases, some extend to broader healthcare and data research topics.

Our Scientific Partnerships

Rare Disease-Focused Collaborations

Orphanet – RDK Rare Disease Knowledge®

The challenge

Rare diseases are complex and often lead to lengthy diagnostic delays, with patients waiting 2 to 7 years for a diagnosis. Healthcare professionals lack centralized tools to identify rare diseases efficiently and guide patients to the right care.

Our collaboration

In partnership with Orphanet, we co-developed an innovative tool that puts the knowledge of 6,300+ rare diseases directly in the hands of healthcare professionals. From symptom recognition to finding expert centers, this solution simplifies rare disease management and empowers clinicians at every step.

Our collaboration

Instant Access to Knowledge: A complete, up-to-date database of rare diseases, enriched by Orphanet and featuring the latest clinical and genetic data.
Symptom-Based Search: An intuitive assistant that enables quick identification of diseases based on observed signs and symptoms.
Expert Guidance: Direct access to expert centers, listed by relevance or via an interactive map, along with clinical trial and publication information.
Empowered Decision-Making: Comprehensive resources, including clinical descriptions, genes, and recommendations from HAS, ensure informed patient care.

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Discover RDK Rare Disease Knowledge®

ERDERA (European Rare Diseases Research Alliance) – Monitoring Rare Disease Research Progress

The challenge

Understanding how rare disease research is funded and progresses across Europe is essential for researchers, policymakers, and the public. However, the lack of transparency and centralized tools often makes it difficult to track the status and impact of funded projects.

Our collaboration

Partnering with ERDERA, we developed tools to monitor the progress of the ERDERA initiative, providing transparency and empowering researchers, policymakers, and curious individuals to easily access and understand the status of funding and projects. This platform tracks and showcases the ongoing impact of European efforts in rare disease research.

Impact

Enhanced Transparency: An intuitive platform that makes information about rare disease research funding and projects accessible to everyone.
Empowering Researchers: Enables researchers to track funding opportunities and collaborate more effectively within the rare disease community.
Informing Stakeholders: Provides policymakers and the public with insights into the progress and achievements of funded initiatives.
Driving Engagement: Encourages a culture of openness and collaboration in the rare disease research ecosystem.

Check the ERDERA Dashboards

Academic & University Collaborations

Helping the healthcare professionals of tomorrow

University Hospitals

Through our ReaLifeData® service, we partner with prestigious university hospitals like HCL Caen and CHRU Nancy to support medical students and clinicians in their academic research and thesis publications. By providing tailored, curated datasets, we empower them to produce high-impact work and drive groundbreaking discoveries.